Each year, CSC releases an annual report, expressing gratitude to all of our supporters and relaying the impacts of their generosity through stories. Today we are releasing our 2017 report. In the report we highlight the journey of a family with Spinal Muscular Atrophy, important advances in research, and the ways we have engaged the communities we serve. We are also presenting the story about the incredible impact one beautiful woman, Esther Davies, made on the Clinic for Special Children and the Plain communities through a lifetime of passion and advocacy. We are now sharing her story with a heavy heart as we learned of Esther’s passing last evening. We invite you to help us celebrate her through our thank you to Esther and her friend, John Thackrah found on page 13. On behalf of the board and staff of CSC and the countless children who have benefitted from her kindness, we wish to express our sincere gratitude and condolences to Esther’s friends and family.
Month: March 2018
Registration for our 2018 midwife conference is open!
Midwifery Pearls: Caring for the Newborn
Clinic for Special Children’s 2018 Midwife Conference
Thursday, May 24th | 8:30 a.m. to 4:30 p.m.
at Clinic for Special Children in Strasburg, PA
*Please Register by May 18th
This event is designed to provide midwives with the most up-to-date information, emphasizing recent developments in midwifery healthcare practice and to provide key solutions to the latest challenges faced by midwives. We also present a comprehensive review of disease screening and management for commonly encountered diseases in Amish and Mennonite communities. This course is intended for certified nurse midwives, lay nurse midwives, and others interested in the care of newborns.
View the full conference brochure and agenda HERE
Register below with your credit card
or print and mail your registration form and check:
Checks written to: Clinic for Special Children
Mail to: 535 Bunker Hill Road
Strasburg, PA 17579
For additional questions about our conference, please contact:
Christine Hendrickson, RNC
E-mail: chendrickson@clinicforspecialchildren.org
Phone: 717-687-9407
Retired MLB pitcher Jesse Crain and wife host Arizona event for CSC with Newkirk family
Last week, Clinic for Special Children’s Dr. Kevin Strauss (Medical Director) and Teresa Rineer (Development Director) traveled to Scottsdale, Arizona to participate in a special philanthropic event organized to help children living with rare disorders and raise awareness about CSC’s work with rare genetic disease. Retired White Sox pitcher Jesse Crain and his wife Becky partnered with the Newkirk family to host a “Swing FORE the Kids” Topgolf tournament through the Crain Family Foundation. The money that was raised from the event will be used to help subsidize the cost of travel to CSC for children living with rare genetic conditions, helping them access the specialized care they need.
The Crain Family Foundation generously hosted this event in partnership with Kris and Maureen Newkirk, parents of a child cared for by our Clinic, Charlie Newkirk. Seeking the best care for their son living with a rare genetic disease called Glutaric Acidemia Type 1, Kris and Maureen traveled from Arizona to the Clinic for Special Children. Visiting CSC was a “game-changer” for Kris.
“Dr. Strauss met with us for three hours to examine Charlie and make adjustments to his treatment. As the world’s foremost expert in GA1, he gave us a level of comfort that no other provider could possibly give to us,” Kris told the Crain Family Foundation.
The whole Newkirk family (Kris, Maureen, Henry, Paul and Charlie) graciously hosted Dr. Strauss and Teresa for a family style dinner on Sunday night before the Topgolf event. Kris and Maureen introduced Dr. Strauss and Teresa to several other families and children affected by a rare genetic disease, creating meaningful memories and lasting relationships. Read the rest of the Newkirk’s story here.
The Crain Family Foundation’s “Swing FORE the Kids” event on Monday evening, February 26th, drew a diverse crowd of at least 40 professional atheletes and coaches, community members, family and friends, and others who share a passion for raising awareness about rare disease. Attendees were offered the opportunity to play golf with celebrity athletes, bid on a variety of items through a silent auction, and enjoy great food, drink, and camaraderie in support of the Clinic’s cause.
Celebrity appearances included, but are not limited to, Jon Lester, Trevor Plouffe, Drew Butera, Brian Duensing, Mark Teahen, Paul Konerko, TJ McFarland, Jonny Gomes, Evan Longoria, Mark Melancon, Brandon Webb, Mike Sweeney, Chris Snyder, George Brett, Ron Villone, Mike Madano, Brendan Perlini, Gordon Beckham, Nate Jones, Matt Albers, Alex Cobb, and Hector Santiago!
See coverage of the event by “Good Morning, Arizona” here.
On behalf of the whole team at Clinic for Special Children, we would like to extend a heartfelt THANK YOU to everyone who helped to make this day possible and for welcoming us. It is truly inspirational to witness the manifestation of CSC’s mission come alive through the altruism of others both at home and halfway across the country. We couldn’t do what we do without you. Thank you!
