Statement from the Clinic for Special Children

Statement from the Clinic for Special Children

Due to patient privacy, we are unable to discuss details regarding this particular inquiry.

For questions regarding measles-associated deaths, please contact the Lancaster County Coroner’s Office directly.

For questions related to Lancaster County’s response to the measles outbreak, please contact the Pennsylvania Department of Health directly.

For questions regarding Amish Lethal Microcephaly, please refer to the following sources and published research papers:

• https://medlineplus.gov/genetics/condition/amish-lethal-microcephaly/
• Siu VM, Ratko S, Prasad AN, Prasad C, Rupar CA. Amish microcephaly: Long-term survival and biochemical characterization. Am J Med Genet A. 2010 Jul;152A(7):1747-51. doi: 10.1002/ajmg.a.33373. PMID: 20583149.
• Rosenberg MJ, Agarwala R, Bouffard G, Davis J, Fiermonte G, Hilliard MS, Koch T, Kalikin LM, Makalowska I, Morton DH, Petty EM, Weber JL, Palmieri F, Kelley RI, Schäffer AA, Biesecker LG. Mutant deoxynucleotide carrier is associated with congenital microcephaly. Nat Genet. 2002 Sep;32(1):175-9. doi: 10.1038/ng948. Epub 2002 Aug 19. PMID: 12185364.
• Kelley RI, Robinson D, Puffenberger EG, Strauss KA, Morton DH. Amish lethal microcephaly: a new metabolic disorder with severe congenital microcephaly and 2-ketoglutaric aciduria. Am J Med Genet. 2002 Nov 1;112(4):318-26. doi: 10.1002/ajmg.10529. PMID: 12376931.