Press Room
Welcome to the Clinic for Special Children press room! Stay informed on the latest news and press releases related to the Clinic and access information, downloads, and contact information.
Press Kit
Our press kit highlights our work in translational medicine and research, how our work is supported, who leads our organization, and more!
Download Press KitPress Releases
Press: National News
SMA News Today, New Spinraza Delivery Technique for Patients With Spinal Deformities. Steve Bryson, PhD, October 20, 2021
Pennsylvania Medical Society, Top Physicians Under 40. PA Medical Society, April 28, 2020
SMA News Today, Clinic Meets Goal Early in SMA Carrier Screening Among Amish, Mennonites. Mary Chapman, February 28, 2020
SMA News Today, Rural Pennsylvania Clinic Treats Amish, Mennonite Children Who Have SMA. Larry Luxner, January 31, 2019
Delaware News Journal, This is why doctors consider precision medicine to be the future of healthcare. Meredith Newman, December 14, 2018
USA Today, Saving Grace: Amish Families are working with doctors and researchers to save a young girl’s life. Meredith Newman, December 13, 2018
Medscape, New Delivery System for Nusinersen Safe in SMA. Deborah Brauser, September 25, 2018
USA Today, How Nemours took care of Mexican Mennonite teen who speaks only a ‘dead language’. Meredith Newman, June 2018
The Washington Post, Pennsylvania clinic treats genetic disorders in Amish and Mennonite people. Nancy Szokan, October 21, 2014
The Philadelphia Inquirer, Anything but plain. Amy Worden, October 12, 2014
NBC News - Health, As U.S. struggles with health reform, the Amish go their own way. Daniel Kelley, Reuters
Associated Press, Blue light aids ill Mennonite children. Helen O'Neill, May 19, 2007
The New York Times Magazine, A Doctor for the Future. L Belkin
The Philadelphia Inquirer, Plain people, exotic illnesses. S Fitzgerald, December 1, 2002
The New York Times, At gene therapy’s frontier, the Amish build a clinic. D Grady, June 29, 1999
The Philadelphia Inquirer, Clinic a lifeline to children. S Stranahan, September 15, 1997
The Baltimore Sun, Hopkins doctor fights genetic disorders in Amish country ‘How good it is that he’s here’. T.W. Waldron
The Wall Street Journal, Amish and Mennonite families spend a Saturday raising a clinic. F Allen
The Wall Street Journal, Country doctor: how a physician solved riddle of rare disease in children of Amish. F Allen
Press: Magazine Feature Stories
Lancaster Farming, Saving Gracie: Annual Auction Raises Funds for Children with Special Needs. Mary Klaus, June 1, 2024
Lancaster Online/Lancaster Newspapers, East Cocalico Township boy with new liver ‘relieved’ to be home on Christmas after transplant. John Walk, December 25, 2023
Lancaster Online/Lancaster Newspapers, Clinic for Special Children unveils designs for a bigger, new center in Leacock Township. Lisa Scheid, April 4, 2023
Lancaster Farming/Lancaster Newspapers, Girl receives treatment from special clinic. Anne Harnish & Enelly Betancourt, June 10, 2022
Lancaster Online/Lancaster Newspapers, Clinic for Special Children to hold benefit auction. Enelly Betancourt, May 30, 2022
Rare Revolution Magazine, Putting the community and its values first. Nicola Miller, July 26, 2021
Pennsylvania Physician | Pennsylvania Medical Society, Innovation and Impact at the Clinic for Special Children. Adam Heaps, April 21, 2020
Susquehanna Life Magazine, A Pioneering Approach to Healing. Jennifer Pencek, April 21, 2020
Daily Local News, Mask makers serving the community. Bill Rettew, April 8, 2020
Central Penn Business Journal, Lancaster County clinic expands at-home services for pediatric patients in Plain communities. Ioannis Pashakis, February 11, 2020
Lancaster Newspapers/LancasterOnline, A special place: Strasburg’s Clinic for Special Children celebrates 30 years of pioneering work on treating genetic mutations. Mike Andrelczyk, March 29, 2019
Lancaster County Magazine, Why I Volunteer. Briana Webster Hess, April 2019
Lancaster Newspapers/LancasterOnline, Strasburg nonprofit treating rare diseases in Plain sect people sees promise in new DNA testing method. Heather Stauffer, February 7, 2019
Lancaster Physician, 25 Years of Personalized, Genomic Medicine in Lancaster County. Matthew Sware, Fall 2014
Pennsylvania Office of Rural Health, 25 Years of Saving Childrens’ Lives. Susan J. Burlingame, fall, 2014
Mental Floss, At the Cross Roads. Rene Ebersole, October, 2014
HHMI Bulletin, Teaching Genomics, Plainly. T. Gura, Fall 2012
Nature, Genomics, Plain and Simple. T. Gura
Franklin & Marshall Magazine, Field of Genes. E. Schoeniger, November 21, 2007
Smithsonian, Medical Sleuth. T Shachtman, February 2006
Fortune, Can Gene Therapy Cure This Child?. M Wadman, May 1, 2000
National Geographic, Secrets of the gene. J Shreeve, October 1999
Measure (Hewlett-Packard), Keeping the Faith. T Ulrich, March - April 1997
Johns Hopkins Magazine, A Doctor Who Makes Barn Calls. M Hendricks, November 1994
Reader's Digest, The Doctor Who Conquered a Killer. R Wolkomir and J Wolkomir, July 1991
Saturday Evening Post, Tracking a killer. R Ver Berkmoes, June 1991
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Media Inquiries
For more information on the Clinic or to contact our team, please see below.
Press Contact
Support our mission of providing compassionate, affordable, and efficient care to families facing rare genetic disorders!
Our clinic serves as a trusted medical practice for children and adults facing rare genetic disorders. Our dedicated team works every day to prevent and treat genetic illnesses. Our facility is in the heart of the Amish and Mennonite communities in Lancaster County. Inside is filled with cutting-edge gene sequencing tools that allow us to deliver highly personalized care—a precise treatment option for the right patient at the right time.