News

COVID-19 Updates

March 20, 2020 Our Medical Director, Dr. Kevin A. Strauss, has released an open letter to provide the Plain Community critical information about COVID-19, what it means for them, and how we can work together to protect our loved ones. Read the open letter here   March 17, 2020 Ensuring safety and well-being is at […]

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Spinal Muscular Atrophy (SMA) Plain community carrier screening program yields impactful results

The program identified carriers in the Plain community to deliver innovative treatments presymptomatically to affected newborns STRASBURG, PA- The Clinic for Special Children (CSC) has completed its Spinal Muscular Atrophy (SMA) Prevention Readiness program. The program, launched in 2018, offered free carrier testing with the goal of identifying Plain (Amish or Mennonite) individuals and couples […]

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Enjoy CSC’s 2020 Spring Newsletter

The Spring 2020 edition of our newsletter includes the Weaver’s journey with Phenylketonuria (PKU), our 2020 Benefit Auction schedule and details, a 2019 year in review, local, and regional foundational support of the Clinic, and more!   Read the 2020 Spring CSC newsletter HERE

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CSC honored with national ‘Rare Impact Award’ from the National Organization of Rare Disorders (NORD®)

STRASBURG, PA- The Clinic for Special Children (CSC) announced today that its Leadership Team has been named as a 2020 Rare Impact Award honoree by the National Organization for Rare Disorders (NORD). NORD is the leading independent advocacy organization dedicated to improving the lives of patients and families impacted by rare diseases. The annual Rare […]

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CSC expands Palliative Care Program with support from WellSpan Health Community Partnership Grant

LANCASTER COUNTY, PA- The Clinic for Special Children (CSC) is formalizing and expanding its home-based pediatric palliative and hospice care program, Cherished Lives, for Plain patients (Amish and Mennonite) with the support of a $10,000 Community Partnership Grant from WellSpan Health. The expansion of palliative care services is driven by the needs of Plain patients […]

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Groundbreaking 30-year study identifies critical need of disease-modifying therapies for Maple Syrup Urine Disease (MSUD)

STRASBURG, PA- A new study analyzes 30 years of patient data and details the clinical course of 184 individuals with genetically diverse forms of Maple Syrup Urine Disease (MSUD), which is among the most volatile and dangerous inherited metabolic disorders. Researchers collected data on survival, hospitalization rates, metabolic crises, liver transplantation, and cognitive outcome. This […]

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Support children with rare genetic disease, like Ian!

The Lapp family graciously wrote about their journey with their son, Ian’s, diagnosis of Glutaric Aciduria type 1 (GA1) and the Clinic for Special Children for our Annual Giving Appeal. You can read their handwritten story below, with an opportunity to give children, like Ian, a bright future. Continue reading Ian’s story HERE How Can […]

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Over $73,000 raised during 2019 Extraordinary Give!

On Friday, November 22, 2019 over 290 Extraordinary people made a donation to the Clinic for Special Children with over $73,000 raised! With the help of all of our donors, we surpassed our goal of $70,000 for this year’s ExtraGive! In 2018, $62,000 was raised for CSC through the ExtraGive. The ExtraOrdinary Give is Lancaster […]

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2019 ExtraGive | Support CSC on November 22nd!

Support the Clinic on Friday, November 22nd during the 2019 ExtraGive! The countdown to the 2019 Extraordinary Give is on! Will you help us reach our goal of $70,000 raised for the Clinic in 24 hours? On Friday, November 22, 2019 donations will be accepted from 12 midnight – 11:59 PM as part of Lancaster County’s largest day of online giving. […]

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CSC adds three new members to Board of Directors

The Clinic for Special Children has added three new members to our Board of Directors. Peter B. Crino, MD, PhD, Stephen Tifft, MD, and Glen Zimmerman will be joining the Board of Directors effective October 2019. Peter B. Crino, MD, PhD is an internationally recognized physician-scientist specializing in developmental brain disorders. Stephen Tifft, MD, is […]

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