News

CSC’s 30th Anniversary featured in Lancaster Newspapers

  The Clinic for Special Children’s 30 year history was featured in Lancaster Newspapers/Lancaster Online! The article includes a timeline of the Clinic’s major milestones and achievements, information about our 30th anniversary books, our future goals, and information on genetics.   Click HERE to read the article!     Photo credit: Suzette Wenger, LNP

Read more

Enjoy CSC’s Spring 2019 Newsletter

  In the 2019 Spring edition of the CSC newsletter, read about our upcoming 2019 Benefit Auction season, the Newswanger family’s journey with NPRL3, our new Plain Insight Panel, the SMA Prevention Readiness Program, and the basics of gene replacement therapy. Read the 2019 Spring CSC Newsletter HERE

Read more

Clinic Volunteers Featured in April Issue of Lancaster County Magazine

Clinic for Special Children volunteers, Carlyn Darby and John Thackrah, were featured in the April issue of Lancaster County Magazine. They explained “Why I Love to Volunteer” and the various ways that they support the mission of the Clinic. We are so thankful to everything they do to support us!   Click the photo below […]

Read more

Researchers identify novel mass spectrometric quantification method of plasma GSL’s in GM3 ganglioside deficiency

STRASBURG, PA- Researchers from the Clinic for Special Children and University of Georgia have identified a novel mass spectrometric quantification method of plasma glycosphingolipids in human GM3 ganglioside deficiency. Human genetic disorders affecting early steps in glycosphingolipid (GSL) biosynthesis promulgate devastating neurological consequences. The research is published in the recent edition of Clinical Mass Spectrometry. […]

Read more

Jesse Crain’s (Retired MLB White Sox player) family foundation hosts CSC fundraiser

Each year the Crain Family Foundation organizes a special philanthropic event at the TopGolf in Scottsdale, AZ called ‘Swing Fore the Kids’. The Crain Family Foundation was founded by retired White Sox MLB pitcher Jesse Crain and his wife, Becky Crain. The foundation partnered with Kris and Maureen Newkirk, parents of a child cared for […]

Read more

New CSC Auctions Website Launched!

We now have an exclusive website for our benefit auctions! Visit www.ClinicAuctions.org to view the most up-to-date about our 2019 benefit auction season starting in June!  

Read more

Plain Insight Panel featured on Lancaster Newspapers/LancasterOnline

The Clinic for Special Children’s new Next Generation Sequencing technology was featured in an article on Lancaster Newspapers/LancasterOnline. Since 1989, the Clinic for Special Children in Strasburg has been identifying and treating rare genetic diseases among Plain sect people, including the Amish and Old Order Mennonites. Now, leaders of the nonprofit say, a new DNA testing method called […]

Read more

Researchers Publish Largest Description of ST3GAL5 (GM3 Synthase) Deficiency

STRASBURG, PA- Researchers have combined the largest description of ST3GAL5 (GM3 synthase) deficiency using detailed natural history data from 104 individuals of Amish ancestry born between 1986 and 2017 with a definite or probable diagnosis of ST3GAL5 deficiency. The study examined objective measures of biochemistry, auditory function, brain development, and caregiver burden. GM3 synthase is […]

Read more

Clinic Featured on SMA News Today

The SMA News Today team visited our Clinic and wrote a comprehensive piece on what we do at the Clinic, especially with our recent work on Spinal Muscular Atrophy.   “Visitors to the Clinic for Special Children (CSC) just outside Strasburg, Pennsylvania, might be forgiven for thinking they’ve made a wrong turn. Hidden at the end of […]

Read more

Dr. Kevin A. Strauss Speaks at Israel Society for Metabolic Disease (ISMD) Meeting

  On Wednesday, January 23, 2019, Dr. Kevin A. Strauss attended the Israel Society for Metabolic Disease (ISMD) Annual Meeting as an invited speaker in Petach Tikvah, Israel. During the meeting, Dr. Strauss delivered talks entitled ‘Plain People and Precision Medicine’ and ‘Challenge and Opportunity: Gene-Based Therapies for Rare Disorders.”   To learn more about […]

Read more