News

Groundbreaking 30-year study identifies critical need of disease-modifying therapies for Maple Syrup Urine Disease (MSUD)

STRASBURG, PA- A new study analyzes 30 years of patient data and details the clinical course of 184 individuals with genetically diverse forms of Maple Syrup Urine Disease (MSUD), which is among the most volatile and dangerous inherited metabolic disorders. Researchers collected data on survival, hospitalization rates, metabolic crises, liver transplantation, and cognitive outcome. This […]

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Support children with rare genetic disease, like Ian!

The Lapp family graciously wrote about their journey with their son, Ian’s, diagnosis of Glutaric Aciduria type 1 (GA1) and the Clinic for Special Children for our Annual Giving Appeal. You can read their handwritten story below, with an opportunity to give children, like Ian, a bright future. Continue reading Ian’s story HERE How Can […]

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Over $73,000 raised during 2019 Extraordinary Give!

On Friday, November 22, 2019 over 290 Extraordinary people made a donation to the Clinic for Special Children with over $73,000 raised! With the help of all of our donors, we surpassed our goal of $70,000 for this year’s ExtraGive! In 2018, $62,000 was raised for CSC through the ExtraGive. The ExtraOrdinary Give is Lancaster […]

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2019 ExtraGive | Support CSC on November 22nd!

Support the Clinic on Friday, November 22nd during the 2019 ExtraGive! The countdown to the 2019 Extraordinary Give is on! Will you help us reach our goal of $70,000 raised for the Clinic in 24 hours? On Friday, November 22, 2019 donations will be accepted from 12 midnight – 11:59 PM as part of Lancaster County’s largest day of online giving. […]

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CSC adds three new members to Board of Directors

The Clinic for Special Children has added three new members to our Board of Directors. Peter B. Crino, MD, PhD, Stephen Tifft, MD, and Glen Zimmerman will be joining the Board of Directors effective October 2019. Peter B. Crino, MD, PhD is an internationally recognized physician-scientist specializing in developmental brain disorders. Stephen Tifft, MD, is […]

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Enjoy CSC’s Fall Newsletter!

In the 2019 Fall edition of the CSC newsletter, read about natural history studies, the Rosebrook family’s one in a million journey, the WeeUsables team’s support of CSC, purchase options for our new books, and more! Read the 2019 Fall CSC Newsletter HERE

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$40,000 raised and over 350 registrants for the 2019 Clinic for Special Children 5k!

THANK YOU to everyone who came out on Saturday, September 21st and made our 2nd annual Clinic for Special Children 5k such a success! Because of you and over 350 registrants, a total of $40,000 was raised to benefit the Clinic! The race results are posted on the Pretzel City Sports website here. To view more […]

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Register for 2019 Clinic for Special Children 5k today!

Join us for our 2nd annual Clinic for Special Children 5k on Saturday, September 21st, presented by Nemours Children’s Health System! There will be a kid’s fun run, bake sale, silent auction, and children’s crafts planned for the day! Proceeds support the mission of Clinic for Special Children, a medical home for children and adults […]

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Dr. Kevin A. Strauss on team studying disease burden of Crigler-Najjar syndrome

Dr. Kevin A. Strauss, Medical Director at the Clinic for Special Children, was part of a team of researchers examining the disease burden of Crigler-Najjar syndrome. The study was reported in the September 8th edition of the Journal of Gastroenterology and Hepatology. Click here to read more about this study!

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2019 Clinic for Special Children 5k to feature Whoopie Pie Medals

(Strasburg, PA August 2019) The Clinic for Special Children, a non-profit medical home for children and adults with rare genetic diseases, is hosting its 2nd annual 5k race on Saturday September 21st at 9a.m. The race will begin and end at the Clinic (535 Bunker Hill Road, Strasburg, PA, 17579). All proceeds from the event […]

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