News

Register here for our FIRST annual Clinic for Special Children 5K Run/Walk/Jog – September 22

Please join us for our FIRST 5K Run/Jog/Walk to benefit Clinic for Special Children! Enjoy a 5K, free refreshments, a silent auction, and crafts for kids among the many family-friendly activities planned for the day! Proceeds support the mission of Clinic for Special Children, a medical home for children living with rare genetic disease. Register […]

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CSC featured in Boston Globe Media’s STAT for role in helping to create pathways for access to specialized care

Published by STAT of Boston Globe Media on May 8, 2018, CSC and Dr. Kevin A. Strauss were featured in a national article highlighting financial barriers the Plain community faces in accessing specialized medical therapies and featuring CSC’s unique role in creating pathways to access for both patients of CSC and the Amish and Mennonite […]

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A New Service Available: SMA Carrier Testing

After months of development, the CSC laboratory is proud to announce two new tests for spinal muscular atrophy (SMA), tests that have significant implications for the services and care we offer to the patient families we serve. SMA is a devastating genetic disease that is found within the Plain community but also diagnosed world wide. […]

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Please enjoy CSC’s spring 2018 newsletter!

In our spring 2018 newsletter, read the intimate story of Ken and Joanna Weaver’s journey with rare genetic disease, raising four boys with spinal muscular atrophy (SMA) in a vision of hope, joy, and love. Also in this issue, we reveal new services offered for patients and their families, auction news, details about our upcoming […]

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Dr. Strauss special feature published by Lancaster Newspaper and LancasterOnline

Published this weekend by Lancaster Newspaper and LancasterOnline, read Dr. Kevin Strauss’s special feature written about CSC’s practical application of genomic medicine to develop innovative therapies for children living with rare genetic disease, ‘Case of a Brazilian boy, genomic medicine and a county clinic.’ Read the full article here.

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CSC’s 2017 Annual Report – Your Impact

Each year, CSC releases an annual report, expressing gratitude to all of our supporters and relaying the impacts of their generosity through stories. Today we are releasing our 2017 report. In the report we highlight the journey of a family with Spinal Muscular Atrophy, important advances in research, and the ways we have engaged the communities […]

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Registration for our 2018 midwife conference is open!

Midwifery Pearls: Caring for the Newborn Clinic for Special Children’s 2018 Midwife Conference Thursday, May 24th | 8:30 a.m. to 4:30 p.m. at Clinic for Special Children in Strasburg, PA *Please Register by May 18th This event is designed to provide midwives with the most up-to-date information, emphasizing recent developments in midwifery healthcare practice and […]

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Retired MLB pitcher Jesse Crain and wife host Arizona event for CSC with Newkirk family

Last week, Clinic for Special Children’s Dr. Kevin Strauss (Medical Director) and Teresa Rineer (Development Director) traveled to Scottsdale, Arizona to participate in a special philanthropic event organized to help children living with rare disorders and raise awareness about CSC’s work with rare genetic disease. Retired White Sox pitcher Jesse Crain and his wife Becky partnered […]

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The Ephrata Review highlights CSC’s Dr. Williams and the story of a life saved

Through a partnership between the Clinic for Special Children in Strasburg, PA, Cardiology Care for Children in Lancaster, PA, and midwives throughout the region, babies born at home are receiving vital wellness screenings and, if a problem is detected, get immediate medical care before they become critically ill. The test, called pulse oximetry, measures the […]

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CSC a site for first Crigler-Najjar gene therapy clinical trial in the world

As we strive to stay at the forefront of medical innovation and revolutionary therapies for complex genetic disorders, Clinic for Special Children becomes an important site for the first gene therapy clinical trial for Crigler-Najjar Syndrome in the world. “From Blue Lights to Gene Therapy: The Intriguing History of Crigler-Najjar Syndrome” talks about the Clinic […]

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