Thank you to over 370 runners, joggers, and walkers who joined us on Saturday, September 16, 2023, for our 6th annual Clinic for Special Children 5k. Over $47,000 was raised […]

STRASBURG, PA – A new study summarizes WiTNNess – a hybrid prospective/cross-sectional observational study of TNNT1 myopathy, a rare and lethal neuromuscular disease that causes progressive muscle weakness and stiffness, […]

REGISTER TODAY! Join us for the 6th annual Clinic for Special Children 5k on Saturday, September 16th from 9:00 a.m. – 11:00 a.m presented by Nemours Children’s Health. Runners, joggers, and […]

Our Summer 2023 newsletter is out now! This edition of the Clinic’s newsletter focuses on rare genetic disorders that cause immune deficiencies in the community. Read a family’s story, learn […]

The special edition of our Spring 2023 newsletter is here! Our Keeping the Promise: Building Hope capital campaign to raise funds for our new building project is the focus of […]

We have exciting news to share about a transformational project! We have officially launched the Keeping the Promise: Building Hope capital campaign to build a new facility for the Clinic. […]

Our informational brochure for 2023 is here! Learn more about our services, key stats, what makes us unique, and how we offer affordable and accessible care. To view the updated […]

This year is packed with fundraising events to support the Clinic! From auctions to a 5k race, there’s plenty of fun to be had at our upcoming 2023 CSC events! […]

The Clinic’s 2022 Annual Report is now available! This year’s report features our work with seizure disorders, an interview with our community liaison, our financial performance in 2022, how the […]

In commemoration of Rare Disease Day on February 28th, we are excited to share that our international research team is the recipient of the prestigious global Jeffrey Modell Foundation Translational […]