News

Plain Insight Panel featured on Lancaster Newspapers/LancasterOnline

The Clinic for Special Children’s new Next Generation Sequencing technology was featured in an article on Lancaster Newspapers/LancasterOnline. Since 1989, the Clinic for Special Children in Strasburg has been identifying and treating rare genetic diseases among Plain sect people, including the Amish and Old Order Mennonites. Now, leaders of the nonprofit say, a new DNA testing method called […]

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Researchers Publish Largest Description of ST3GAL5 (GM3 Synthase) Deficiency

STRASBURG, PA- Researchers have combined the largest description of ST3GAL5 (GM3 synthase) deficiency using detailed natural history data from 104 individuals of Amish ancestry born between 1986 and 2017 with a definite or probable diagnosis of ST3GAL5 deficiency. The study examined objective measures of biochemistry, auditory function, brain development, and caregiver burden. GM3 synthase is […]

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Clinic Featured on SMA News Today

The SMA News Today team visited our Clinic and wrote a comprehensive piece on what we do at the Clinic, especially with our recent work on Spinal Muscular Atrophy.   “Visitors to the Clinic for Special Children (CSC) just outside Strasburg, Pennsylvania, might be forgiven for thinking they’ve made a wrong turn. Hidden at the end of […]

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Dr. Kevin A. Strauss Speaks at Israel Society for Metabolic Disease (ISMD) Meeting

  On Wednesday, January 23, 2019, Dr. Kevin A. Strauss attended the Israel Society for Metabolic Disease (ISMD) Annual Meeting as an invited speaker in Petach Tikvah, Israel. During the meeting, Dr. Strauss delivered talks entitled ‘Plain People and Precision Medicine’ and ‘Challenge and Opportunity: Gene-Based Therapies for Rare Disorders.”   To learn more about […]

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2019 Benefit Auction Dates Announced!

Join us for our 2019 Auction Season! Each auction promises a day of fun, fellowship, and good food!   7:00 a.m. Breakfast | 8:30 a.m. Auction Begins | Physician Remarks and Quilts to Follow Union County Auction Saturday, June 1, 2019 Friday, May 31, 2019 | Rib Dinner & Flower Auction | 5-8 p.m. Buffalo […]

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Clinic for Special Children’s Work Highlighted in USA Today

The Clinic for Special Children’s work was recently highlighted in partnership with Nemours/A.I. duPont Children’s Hospital in an article on USA Today & Delaware News Journal. The story is titled “Saving Grace: Amish families are working with doctors and researchers to save a young girl’s life ” and was written by reporter Meredith Newman with […]

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Dr. Kevin A. Strauss Delivers Keynote Address at Hot Topics Conference

On December 3, 2018 Dr. Kevin A. Strauss, Medical Director at the Clinic for Special Children, gave a Keynote Address at the 2018 Hot Topics in Neonatology Conference in Washington D.C. His address was titled “Plain People and Precision Medicine.” Click HERE to watch a follow-up interview to his Keynote Address.

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You Can Help Provide Bright Futures for Children Like Kaiden

The Hurst family graciously wrote their first-hand experience with the Clinic for Special Children for our Annual Giving Appeal. You can read their heart-touching story below, with an opportunity to give children, like Kaiden, a bright future.   Greetings from the Hurst Family! As our family says goodbye to an eventful year (or maybe I […]

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Dr. Kevin A. Strauss named 2018 Rural Health Community Star

Each year the National Organization of State Offices of Rural Health (NOSORH) organizes National Rural Health Day, an annual day of recognition for those who serve the vital health needs of nearly 60 million people residing in America’s rural communities, estimated to be 1 in 5 Americans. In 2015, NOSORH launched the “Community Star” recognition […]

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Researchers Find Multisystem Disorder Caused by CCDC47 Variants

STRASBURG, PA & TOPEKA, IN- Researchers and clinicians through a multicenter collaboration have identified a novel multisystem disorder caused by bi-allelic variants in the CCDC47 gene. Their findings are reported in The American Journal of Human Genetics. CCDC47 is responsible for encoding an essential calcium (Ca2+)-binding protein involved in embryogenesis and development. Calcium signaling is […]

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