News
CSC receives grant from Jeffrey Modell Foundation as part of RAG1 international research team
Posted on February 28, 2023
In commemoration of Rare Disease Day on February 28th, we are excited to share that our international research team is the recipient of the prestigious global Jeffrey Modell Foundation Translational […]
A New Year’s Letter from our Executive Director
Posted on January 19, 2023
Friends, The Clinic for Special Children serves as a beacon of hope for the hundreds of families that walk through our doors each year. From providing answers to complicated medical […]
Watch Dr. Vincent Carson’s TEDx Lancaster Talk “The Power of a Genetic Diagnosis”
Posted on December 29, 2022
In 2021, Dr. Vincent Carson delivered a TEDx Lancaster talk about “The Power of a Genetic Diagnosis”. You can now view his full talk on YouTube HERE. About Dr. Carson […]
Brothers bonded by CODAS syndrome | The King Family’s Story
Posted on December 5, 2022
The King family shared their story about how their sons, Jevon and Josiah, are cared for with compassion at the Clinic for Special Children for our Annual Giving Appeal. You […]
2022 ExtraGive | Support the Clinic on Friday, November 18th!
Posted on October 24, 2022
You can help make an EXTRAORDINARY difference! We’re counting down the days until the Extraordinary Give on Friday, November 18th – Lancaster County’s largest day of online giving! Last year Clinic for Special Children […]
Enjoy our Fall 2022 Newsletter!
Posted on September 1, 2022
Our Fall 2022 newsletter is here! Our last newsletter issue for 2022 focuses on rare genetic disorders that cause dwarfism in the community. Read a patient’s story, learn about living […]
Over $40,000 raised during the 2022 Clinic for Special Children 5k!
Posted on August 8, 2022
Thank you for raising over $40,000 for the Clinic for Special Children during the 2022 5k! It was a great fall morning with over 292 registrants, a bake sale, kid’s […]
Register today for the 2022 Clinic for Special Children 5k!
Posted on June 20, 2022
REGISTER TODAY! Join us for the 5th annual Clinic for Special Children 5k on Saturday, September 17th from 9:00 a.m. – 11:00 a.m presented by Nemours Children’s Health. Runners, joggers, […]
Dr. Kevin Strauss lead author on recently published papers demonstrating the safety & efficacy of SMA gene therapy
Posted on June 17, 2022
Recently published companion papers detail the safety and efficacy of onasemnogene abeparvovec, a gene replacement therapy for spinal muscular atrophy (SMA), for presymptomatic infants with two or three copies of […]
Enjoy our Summer 2022 Newsletter!
Posted on June 14, 2022
Our summer newsletter is hot off the press! This summer’s newsletter focuses on seizure disorders that we commonly see at the Clinic. Read about a family’s journey with DEPDC5, common seizure […]