News

Researchers identify novel mass spectrometric quantification method of plasma GSL’s in GM3 ganglioside deficiency

STRASBURG, PA- Researchers from the Clinic for Special Children and University of Georgia have identified a novel mass spectrometric quantification method of plasma glycosphingolipids in human GM3 ganglioside deficiency. Human genetic disorders affecting early steps in glycosphingolipid (GSL) biosynthesis promulgate devastating neurological consequences. The research is published in the recent edition of Clinical Mass Spectrometry. […]

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Jesse Crain’s (Retired MLB White Sox player) family foundation hosts CSC fundraiser

Each year the Crain Family Foundation organizes a special philanthropic event at the TopGolf in Scottsdale, AZ called ‘Swing Fore the Kids’. The Crain Family Foundation was founded by retired White Sox MLB pitcher Jesse Crain and his wife, Becky Crain. The foundation partnered with Kris and Maureen Newkirk, parents of a child cared for […]

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New CSC Auctions Website Launched!

We now have an exclusive website for our benefit auctions! Visit www.ClinicAuctions.org to view the most up-to-date about our 2019 benefit auction season starting in June!  

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Plain Insight Panel featured on Lancaster Newspapers/LancasterOnline

The Clinic for Special Children’s new Next Generation Sequencing technology was featured in an article on Lancaster Newspapers/LancasterOnline. Since 1989, the Clinic for Special Children in Strasburg has been identifying and treating rare genetic diseases among Plain sect people, including the Amish and Old Order Mennonites. Now, leaders of the nonprofit say, a new DNA testing method called […]

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Researchers Publish Largest Description of ST3GAL5 (GM3 Synthase) Deficiency

STRASBURG, PA- Researchers have combined the largest description of ST3GAL5 (GM3 synthase) deficiency using detailed natural history data from 104 individuals of Amish ancestry born between 1986 and 2017 with a definite or probable diagnosis of ST3GAL5 deficiency. The study examined objective measures of biochemistry, auditory function, brain development, and caregiver burden. GM3 synthase is […]

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Clinic Featured on SMA News Today

The SMA News Today team visited our Clinic and wrote a comprehensive piece on what we do at the Clinic, especially with our recent work on Spinal Muscular Atrophy.   “Visitors to the Clinic for Special Children (CSC) just outside Strasburg, Pennsylvania, might be forgiven for thinking they’ve made a wrong turn. Hidden at the end of […]

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Dr. Kevin A. Strauss Speaks at Israel Society for Metabolic Disease (ISMD) Meeting

  On Wednesday, January 23, 2019, Dr. Kevin A. Strauss attended the Israel Society for Metabolic Disease (ISMD) Annual Meeting as an invited speaker in Petach Tikvah, Israel. During the meeting, Dr. Strauss delivered talks entitled ‘Plain People and Precision Medicine’ and ‘Challenge and Opportunity: Gene-Based Therapies for Rare Disorders.”   To learn more about […]

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2019 Benefit Auction Dates Announced!

Join us for our 2019 Auction Season! Each auction promises a day of fun, fellowship, and good food!   7:00 a.m. Breakfast | 8:30 a.m. Auction Begins | Physician Remarks and Quilts to Follow Union County Auction Saturday, June 1, 2019 Friday, May 31, 2019 | Rib Dinner & Flower Auction | 5-8 p.m. Buffalo […]

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Clinic for Special Children’s Work Highlighted in USA Today

The Clinic for Special Children’s work was recently highlighted in partnership with Nemours/A.I. duPont Children’s Hospital in an article on USA Today & Delaware News Journal. The story is titled “Saving Grace: Amish families are working with doctors and researchers to save a young girl’s life ” and was written by reporter Meredith Newman with […]

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Dr. Kevin A. Strauss Delivers Keynote Address at Hot Topics Conference

On December 3, 2018 Dr. Kevin A. Strauss, Medical Director at the Clinic for Special Children, gave a Keynote Address at the 2018 Hot Topics in Neonatology Conference in Washington D.C. His address was titled “Plain People and Precision Medicine.” Click HERE to watch a follow-up interview to his Keynote Address.

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