News

ASC Therapeutics Announces Partnership to Co-Develop Novel Gene Therapy for Maple Syrup Urine Disease (MSUD)

We are excited to collaborate and work with ASC Therapeutics and the University of Massachusetts Medical School to develop a novel treatment for Maple Syrup Urine Disease (MSUD). Our goal is to “create new hope for patients and their families,” as stated by Dr. Kevin A. Strauss, Medical Director at CSC and collaborating clinical expert […]

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Enjoy Our Summer 2021 Newsletter!

Many of the children seen during the early days of the Clinic are now adults who still require specialized care. Read the Summer 2021 edition of our newsletter to learn about why we offer adult services, meet an adult patient of the Clinic, and hear more about recent Clinic happenings. Read the Summer 2021 Clinic […]

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Welcome Emilienne & Amy!

We recently welcomed two new staff members to our Clinic team! Learn more about Emi and Amy below and how they will be working with our team at the Clinic.   Emilienne Bolettieri Research Associate Emilienne (Emi) joined the Clinic for Special Children in 2021 as a Research Associate. In this role, she will be […]

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2020 Annual Report | Now Available!

Hope in Action | 2020 Annual Report Our 2020 Annual Report is now available! This year’s report outlines our key projects in 2020 throughout the Clinic for Special Children. The theme of the report is “Hope in Action” – as many of our supporters, collaborators, and families banded together in action to provide hope for […]

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Enjoy CSC’s Spring 2021 Newsletter!

The 2021 Spring edition of our newsletter features a central theme of TNNT1 myopathy – a devastating rare genetic disorder. Read about the Stoltzfus’ story of finding hope with TNNT1 myopathy, our recent research studies for TNNT1 myopathy, and an interview with our Research Operations Director, Karlla W. Brigatti, MS, CGC. Read the 2021 Spring […]

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2021 Benefit Auctions Website

To stay up-to-date on 2021 benefit auctions for the Clinic for Special Children, visit the auctions website at www.ClinicAuctions.org. This website will be updated throughout the benefit auction season this year with any event changes, sale bills, flyers, and more.

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2021 Press Kit Now Available

The newest version of our press kit is now available here! Meet our 2021 ambassadors and learn more about how we practice translational medicine and research here at the Clinic. For media inquiries, please contact press@clinicforspecialchildren.org or call us at 717-687-9407.

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2021 Rare Disease Day | Sunday, February 28th

2021 Rare Disease Day Each year our team takes part in Rare Disease Day – an international day of awareness for the over 300 million people worldwide that live with rare diseases. About 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure […]

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Meet our 2021 CSC Ambassadors!

We’re excited to introduce our 2021 Clinic for Special Children ambassadors! A new program this year, our ambassadors will tell their stories and represent the Clinic in a variety of ways. We’re thankful to each family for helping us spread the word about the work of the Clinic!   Michael Fondacaro | 23 years old […]

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A New Year of Compassionate Care & Cutting-Edge Research | Message from our Executive Director

A New Year of Compassionate Care and Cutting-Edge Research Friends, As we reflect on 2020 and the new year ahead, we feel immense gratitude for your overwhelming support in what was a challenging year for many. You allowed us to continue serving the children and adults who rely on our services, and for that we are grateful. […]

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