The Clinic for Special Children’s 30 year history was featured in Lancaster Newspapers/Lancaster Online! The article includes a timeline of the Clinic’s major milestones and achievements, information about our 30th anniversary books, our future goals, and information on genetics.
Click HERE to read the article!
In the 2019 Spring edition of the CSC newsletter, read about our upcoming 2019 Benefit Auction season, the Newswanger family’s journey with NPRL3, our new Plain Insight Panel, the SMA Prevention Readiness Program, and the basics of gene replacement therapy.
Clinic for Special Children volunteers, Carlyn Darby and John Thackrah, were featured in the April issue of Lancaster County Magazine. They explained “Why I Love to Volunteer” and the various ways that they support the mission of the Clinic. We are so thankful to everything they do to support us!
Click the photo below to read the article!
STRASBURG, PA- Researchers from the Clinic for Special Children and University of Georgia have identified a novel mass spectrometric quantification method of plasma glycosphingolipids in human GM3 ganglioside deficiency. Human genetic disorders affecting early steps in glycosphingolipid (GSL) biosynthesis promulgate devastating neurological consequences. The research is published in the recent edition of Clinical Mass Spectrometry.
Each year the Crain Family Foundation organizes a special philanthropic event at the TopGolf in Scottsdale, AZ called ‘Swing Fore the Kids’. The Crain Family Foundation was founded by retired White Sox MLB pitcher Jesse Crain and his wife, Becky Crain. The foundation partnered with Kris and Maureen Newkirk, parents of a child cared for by our Clinic, Charlie Newkirk. Seeking the best care for their son living with a rare genetic disease called Glutaric Acidemia Type 1, Kris and Maureen traveled from Arizona to the Clinic for Special Children.
This event gathers over 80 professional athletes and coaches, community members, family and friends, children with rare genetic disorders and others throughout the nation who share a passion for raising awareness for rare diseases.
The night features opportunities to hit some golfballs with professional athletes & celebrities, bid on a variety of items at their silent auction, and enjoy great food & drinks in support of the Clinic for Special Children’s cause.
We’d like to extend a heartfelt THANK YOU to everyone involved in putting on this great event, especially Jesse and Becky Crain, and Kris and Maureen Newkirk!