On Friday, November 21, 2025, 140 Extraordinary people donated to the Clinic for Special Children and raised over $40,000 for children and adults with rare genetic disorders in just 24 hours during the Extraordinary Give!
We couldn’t do our work without the support of many people, like those who gave during this annual online giving marathon.
This year, in total, the ExtraGive raised $10.3 million for over 451 local non-profit organizations.
A recent collaborative research study, in partnership with the Mayo Clinic and the University of Rochester, resulted in a breakthrough for families affected by a rare inherited neuropathy. The study will be published in the December 9, 2025, issue of the journal Neurology®.
In partnership with the Mayo Clinic and the University of Rochester, we helped create a new, simple, and reliable test for SORD Deficiency.
This disorder causes nerve damage (neuropathy) because the body can’t process certain sugar-alcohols. Since genetic diagnosis is difficult, this new, non-invasive test is a huge step forward for quick and accurate screening.
To learn more about the research: click here.
To view the published paper: click here.
The Extra Give – Lancaster County’s largest day of online giving – is on Friday, November 21st! Help the Clinic raise $75,000 in 24 hours for our mission. You don’t need to be located in Lancaster County – we have donors from all over the country who support us through the ExtraGive. Every dollar you donate on November 21st via the ExtraGive will be stretched by a pool of more than $500,000 from local sponsors.
Giving is simple – here are three ways you can support:
Visit www.ExtraGive.org anytime from 12:00 a.m. to 11:59 p.m. and search for ‘Clinic for Special Children’ to donate online.
Call us at 717-687-9407 between 9:00 a.m. and 5:00 p.m. on Friday, November 21st to donate with a credit card over the phone.
Create your own fundraising page at www.ExtraGive.org: click the Fundraise button on our page. Set up your page before November 21st & help spread the word!