News

Enjoy CSC’s 2020 Summer newsletter!

The 2020 Summer edition of our newsletter includes COVID-19 updates from the Clinic, how the Clinic helped the Beiler family solve the mystery of Aldosterone Deficiency, updates on 2020 events, […]

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2020 Union and Lancaster County Benefit Auctions | Cancelled

After careful consideration and due to COVID-19 public health safety guidelines, the 2020 Union County and Lancaster County Benefit Auctions for the Clinic for Special Children have been canceled. The […]

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CSC researchers publish landmark 30-year study on Crigler-Najjar syndrome

STRASBURG, PA- A new study summarizes more than 30 years of clinical experience and describes the clinical course of 28 individuals homozygous for damaging mutations in the UGT1A1 gene who […]

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Spinal Muscular Atrophy (SMA) Plain community carrier screening program yields impactful results

The program identified carriers in the Plain community to deliver innovative treatments presymptomatically to affected newborns STRASBURG, PA- The Clinic for Special Children (CSC) has completed its Spinal Muscular Atrophy […]

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Enjoy CSC’s 2020 Spring Newsletter

The Spring 2020 edition of our newsletter includes the Weaver’s journey with Phenylketonuria (PKU), our 2020 Benefit Auction schedule and details, a 2019 year in review, local, and regional foundational […]

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CSC honored with national ‘Rare Impact Award’ from the National Organization of Rare Disorders (NORD®)

STRASBURG, PA- The Clinic for Special Children (CSC) announced today that its Leadership Team has been named as a 2020 Rare Impact Award honoree by the National Organization for Rare […]

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CSC expands Palliative Care Program with support from WellSpan Health Community Partnership Grant

LANCASTER COUNTY, PA- The Clinic for Special Children (CSC) is formalizing and expanding its home-based pediatric palliative and hospice care program, Cherished Lives, for Plain patients (Amish and Mennonite) with […]

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Groundbreaking 30-year study identifies critical need of disease-modifying therapies for Maple Syrup Urine Disease (MSUD)

STRASBURG, PA- A new study analyzes 30 years of patient data and details the clinical course of 184 individuals with genetically diverse forms of Maple Syrup Urine Disease (MSUD), which […]

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Support children with rare genetic disease, like Ian!

The Lapp family graciously wrote about their journey with their son, Ian’s, diagnosis of Glutaric Aciduria type 1 (GA1) and the Clinic for Special Children for our Annual Giving Appeal. […]

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Over $73,000 raised during 2019 Extraordinary Give!

On Friday, November 22, 2019 over 290 Extraordinary people made a donation to the Clinic for Special Children with over $73,000 raised! With the help of all of our donors, […]

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