News
Enjoy CSC’s 2020 Summer newsletter!
Posted on June 11, 2020
The 2020 Summer edition of our newsletter includes COVID-19 updates from the Clinic, how the Clinic helped the Beiler family solve the mystery of Aldosterone Deficiency, updates on 2020 events, […]
2020 Union and Lancaster County Benefit Auctions | Cancelled
Posted on May 12, 2020
After careful consideration and due to COVID-19 public health safety guidelines, the 2020 Union County and Lancaster County Benefit Auctions for the Clinic for Special Children have been canceled. The […]
CSC researchers publish landmark 30-year study on Crigler-Najjar syndrome
Posted on April 16, 2020
STRASBURG, PA- A new study summarizes more than 30 years of clinical experience and describes the clinical course of 28 individuals homozygous for damaging mutations in the UGT1A1 gene who […]
Spinal Muscular Atrophy (SMA) Plain community carrier screening program yields impactful results
Posted on February 19, 2020
The program identified carriers in the Plain community to deliver innovative treatments presymptomatically to affected newborns STRASBURG, PA- The Clinic for Special Children (CSC) has completed its Spinal Muscular Atrophy […]
Enjoy CSC’s 2020 Spring Newsletter
Posted on February 14, 2020
The Spring 2020 edition of our newsletter includes the Weaver’s journey with Phenylketonuria (PKU), our 2020 Benefit Auction schedule and details, a 2019 year in review, local, and regional foundational […]
CSC honored with national ‘Rare Impact Award’ from the National Organization of Rare Disorders (NORD®)
Posted on February 14, 2020
STRASBURG, PA- The Clinic for Special Children (CSC) announced today that its Leadership Team has been named as a 2020 Rare Impact Award honoree by the National Organization for Rare […]
CSC expands Palliative Care Program with support from WellSpan Health Community Partnership Grant
Posted on February 11, 2020
LANCASTER COUNTY, PA- The Clinic for Special Children (CSC) is formalizing and expanding its home-based pediatric palliative and hospice care program, Cherished Lives, for Plain patients (Amish and Mennonite) with […]
Groundbreaking 30-year study identifies critical need of disease-modifying therapies for Maple Syrup Urine Disease (MSUD)
Posted on January 24, 2020
STRASBURG, PA- A new study analyzes 30 years of patient data and details the clinical course of 184 individuals with genetically diverse forms of Maple Syrup Urine Disease (MSUD), which […]
Support children with rare genetic disease, like Ian!
Posted on December 16, 2019
The Lapp family graciously wrote about their journey with their son, Ian’s, diagnosis of Glutaric Aciduria type 1 (GA1) and the Clinic for Special Children for our Annual Giving Appeal. […]
Over $73,000 raised during 2019 Extraordinary Give!
Posted on December 3, 2019
On Friday, November 22, 2019 over 290 Extraordinary people made a donation to the Clinic for Special Children with over $73,000 raised! With the help of all of our donors, […]