Each year our team takes part in Rare Disease Day – an international day of awareness for the over 300 million people worldwide that live with rare diseases.
About 1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases (from RareDiseaseDay.org).
View a short video below from staff at the Clinic explaining why Rare Disease Day is important to us!