News
You Can Help Provide Bright Futures for Children Like Kaiden
Posted on November 30, 2018
The Hurst family graciously wrote their first-hand experience with the Clinic for Special Children for our Annual Giving Appeal. You can read their heart-touching story below, with an opportunity to […]
Dr. Kevin A. Strauss named 2018 Rural Health Community Star
Posted on November 28, 2018
Each year the National Organization of State Offices of Rural Health (NOSORH) organizes National Rural Health Day, an annual day of recognition for those who serve the vital health needs […]
Researchers Find Multisystem Disorder Caused by CCDC47 Variants
Posted on November 19, 2018
STRASBURG, PA & TOPEKA, IN- Researchers and clinicians through a multicenter collaboration have identified a novel multisystem disorder caused by bi-allelic variants in the CCDC47 gene. Their findings are reported […]
Over $62,000 Raised Through 2018 ExtraOrdinary Give!
Posted on November 19, 2018
On Friday, November 16, 2018 over 210 Extraordinary people made a donation to the Clinic for Special Children with over $62,000 raised in just 24 hours! The community shattered our […]
Researchers Find Novel Mutation Affecting YARS Causes Multisystem Disease
Posted on November 6, 2018
STRASBURG, PA- Researchers have identified a novel missense mutation in tyrosyl-tRNA synthetase (YARS c.499C>A, p.Pro167Thr) that causes a severe recessive disorder in affected individuals. The study, led by clinicians, researchers […]
Enjoy CSC’s Fall Newsletter!
Posted on October 24, 2018
In this edition of the CSC newsletter, read about the Watson family’s journey with GA-1, our partnership with the Strasburg Rail Road, new CSC staff members, recent research study updates, […]
THANK YOU for making our first Clinic for Special Children 5k a SUCCESS!
Posted on September 24, 2018
THANK YOU to everyone who came out on Saturday, September 22nd and made our first Clinic for Special Children 5k such a success! Because of you and over 280 registrants, […]
Researchers Correlate Spinal Muscular Atrophy Disease Expression with Haplotypes
Posted on September 6, 2018
STRASBURG, PA- A natural history study has provided the first comprehensive clinical description of spinal muscular atrophy (SMA) within the Amish and Mennonite communities and correlates ancestral chromosome 5 haplotypes […]
New Nusinersen Drug Delivery Method Identified for Spinal Muscular Atrophy Patients
Posted on August 24, 2018
STRASBURG, PA- A new report has identified an alternative method to deliver nusinersen to patients with spinal muscular atrophy (SMA) using a subcutaneous intrathecal catheter system (SIC) configured by connecting […]
Register Now! Clinic for Special Children 5k
Posted on August 22, 2018
Please join us for our FIRST 5K Run/Jog/Walk to benefit Clinic for Special Children! $100 CASH PRIZE for overall top male & female runners! Enjoy a 5K, free refreshments, a […]