CSC & Nemours researchers work together to provide high-tech care to Amish families facing Ellis-van Creveld syndrome
Posted on July 1, 2024
A recent research article details our collaborative relationship with Nemours Children’s Health and how we work together to get care to Amish patients who need it most – no matter the challenges.
Read the letter and learn about how we provide high-tech tools to Amish families and help achieve better outcomes for children facing Ellis-van Creveld syndrome (EVC), a rare skeletal dysplasia disorder.
The letter is published in the June issue of Pediatric Pulmonology.