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X-WR-CALDESC:Events for Clinic for Special Children
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DTSTART;TZID=America/New_York:20221103T083000
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UID:7373-1667464200-1667491200@clinicforspecialchildren.org
SUMMARY:MSUD Family Day
DESCRIPTION:The Clinic for Special Children is hosting a family day for families with Maple Syrup Urine Disease (MSUD) on November 3rd at the Strasburg Mennonite Church.  Experts will share updates related to research and clinical care. \nTo attend\, please RSVP with the Clinic by calling (717) 687-9407.  RSVP is required to attend.  There is no cost to the event. \nAgenda: \n8:30 AM: Welcome and Introductions | Kevin A. Strauss\, MD\, Medical Director\, Clinic for Special Children \n8:35 AM: The History of Therapeutics for MSUD | Kevin A. Strauss\, MD\, Medical Director\, Clinic for Special Children \n9:10 AM: Principles of Day-to-day Metabolic Control: What to Measure\, When\, and Why? | Donna L. Robinson\, MSN\, CRNP\, Nurse Practitioner\, Clinic for Special Children \n9:45 AM: Challenges of MSUD Management | Grace Meier\, MD\, Clinic for Special Children\, Family Medicine Physician \n10:20 AM: Break \n10:35 AM: Updates on Liver Transplantation for MSUD | Kyle Soltys\, MD\, Children’s Hospital of Pittsburgh\, Pediatric Transplant Surgeon & Associate Professor of Surgery and/or George Mazariegos\, MD\, Children’s Hospital of Pittsburgh\, Chief\, Pediatric Transplantation & Professor of Surgery and Critical Care \n11:00 AM: Residual Risks Post-Transplant | D. Holmes Morton\, MD\, Central Pennsylvania Clinic\, Medical Director \n11:15 AM: The MSUD Experience From a Parent’s Perspective | Panel Discussion \n12:00 PM: Lunch \n1:oo PM: Clinical Trials for MSUD: A Primer for Families | Karlla Brigatti\, MS\, GCG\, Clinic for Special Children\, Research Operations Director \n1:30 PM: AAV Gene Therapy in Mice with Classic MSUD | Represenatives from UMass Chan Medical School \n2:00 PM: AAV Gene Therapy for Newborn Calves with Classic MSUD | Laura Poskitt\, DO\, Clinic for Special Children\, Pediatrician \n2:40 PM: Family Support Group’s Research Priorities | Karen Dolins\, EdD\, CSSD\, CDN\, MSUD Family Support Group\, Board Member \n3:10 PM: Q & A with Speakers \n4:00 PM: Adjourn
URL:https://clinicforspecialchildren.org/event/msud-family-day/
LOCATION:Strasburg Mennonite Church\, 1514 Village Road\, Strasburg\, PA\, 17579\, United States
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DTSTART;TZID=America/New_York:20221104T120000
DTEND;TZID=America/New_York:20221104T130000
DTSTAMP:20220826T191404Z
CREATED:20211130T201512Z
LAST-MODIFIED:20220826T191404Z
UID:6621-1667563200-1667566800@clinicforspecialchildren.org
SUMMARY:Plain Community Clinical Educational Series | Join Us Virtually!
DESCRIPTION:A new educational series tailored for physicians serving the Plain community is here! This bimonthly\, virtual learning series will occur every other month on the first Friday from noon – 1 p.m. The talk series is organized by a collaboration of WellSpan Health\, the Clinic for Special Children\, and Penn Medicine Lancaster General Health. \nTalks from our inaugural Cultural Considerations for Clinicians: Caring for the Plain Community are available to access for your own education HERE or you can register to view the talks to be eligible for CME credits HERE. \nFor more information on this series\, please contact Stephen Ratcliffe\, MD\, MSPH at sratcliffe@clinicforspecialchildren.org or queries@clinicforspecialchildren.org. \n\n 
URL:https://clinicforspecialchildren.org/event/plain-community-clinical-educational-series-join-us-virtually-6/
LOCATION:Virtual
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221118
DTEND;VALUE=DATE:20221119
DTSTAMP:20220715T192054Z
CREATED:20220203T201343Z
LAST-MODIFIED:20220715T192054Z
UID:6759-1668729600-1668815999@clinicforspecialchildren.org
SUMMARY:2022 Extraordinary Give
DESCRIPTION:You can help make an EXTRAORDINARY difference!\nWe’re counting down the days until the Extraordinary Give on Friday\, November 18 – Lancaster County’s largest day of online giving! Last year Clinic for Special Children supporters helped raise over $110\,000! \n\n\nEvery dollar you donate on November 18th during the ExtraGive will also be stretched by a pool of more than $500\,000 from local sponsors. \nDonating is simple – below are ways you can support the Clinic during the 2022 Extraordinary Give. \n\n On Friday\, November 18th (from midnight to 11:59 p.m.) visit the website ExtraGive.org and select ‘Clinic for Special Children’ to give online during the 24-hour period.\nCall the Clinic at 717-687-9407 between 9:00 a.m. – 5:00 p.m. to donate via credit card over the phone. Won’t have access to internet on the day of ExtraGive? Call us before or on November 18th\, and we’ll help process your ExtraGive donation for you on the day of ExtraGive.\nSet up your own fundraising page! On the day of ExtraGive\, share your page with family and friends to raise money in support of the Clinic for Special Children! Visit ExtraGive.org\, search for ‘Clinic for Special Children’\, and click the orange ‘Fundraise’ button to create your own page before November 18th!\nOn Friday\, November 18th visit our info table at Speckled Hen in Strasburg from 10:00 AM until 2:00 PM! Enjoy a delicious cup of coffee and support the Clinic during the ExtraGive! \n\nFor additional information\, please contact the Clinic’s Development Team at 717-687-9407 or giving@clinicforspecialchildren.org.
URL:https://clinicforspecialchildren.org/event/2022-extraordinary-give/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221124
DTEND;VALUE=DATE:20221126
DTSTAMP:20211130T204117Z
CREATED:20211130T204117Z
LAST-MODIFIED:20211130T204117Z
UID:6639-1669248000-1669420799@clinicforspecialchildren.org
SUMMARY:Thanksgiving Holiday | Office Closed
DESCRIPTION:The CSC office will be closed in observance of the Thanksgiving holiday on Thursday\, November 24th and Friday\, November 25th.
URL:https://clinicforspecialchildren.org/event/thanksgiving-holiday-office-closed-2/
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