News
Groundbreaking 30-year study identifies critical need of disease-modifying therapies for Maple Syrup Urine Disease (MSUD)
Posted on January 24, 2020
STRASBURG, PA- A new study analyzes 30 years of patient data and details the clinical course of 184 individuals with genetically diverse forms of Maple Syrup Urine Disease (MSUD), which […]
Support children with rare genetic disease, like Ian!
Posted on December 16, 2019
The Lapp family graciously wrote about their journey with their son, Ian’s, diagnosis of Glutaric Aciduria type 1 (GA1) and the Clinic for Special Children for our Annual Giving Appeal. […]
Over $73,000 raised during 2019 Extraordinary Give!
Posted on December 3, 2019
On Friday, November 22, 2019 over 290 Extraordinary people made a donation to the Clinic for Special Children with over $73,000 raised! With the help of all of our donors, […]
2019 ExtraGive | Support CSC on November 22nd!
Posted on October 28, 2019
Support the Clinic on Friday, November 22nd during the 2019 ExtraGive! The countdown to the 2019 Extraordinary Give is on! Will you help us reach our goal of $70,000 raised for the Clinic in […]
CSC adds three new members to Board of Directors
Posted on October 17, 2019
The Clinic for Special Children has added three new members to our Board of Directors. Peter B. Crino, MD, PhD, Stephen Tifft, MD, and Glen Zimmerman will be joining the […]
Enjoy CSC’s Fall Newsletter!
Posted on October 8, 2019
In the 2019 Fall edition of the CSC newsletter, read about natural history studies, the Rosebrook family’s one in a million journey, the WeeUsables team’s support of CSC, purchase options […]
$40,000 raised and over 350 registrants for the 2019 Clinic for Special Children 5k!
Posted on September 23, 2019
THANK YOU to everyone who came out on Saturday, September 21st and made our 2nd annual Clinic for Special Children 5k such a success! Because of you and over 350 […]
Register for 2019 Clinic for Special Children 5k today!
Posted on September 12, 2019
Join us for our 2nd annual Clinic for Special Children 5k on Saturday, September 21st, presented by Nemours Children’s Health System! There will be a kid’s fun run, bake sale, […]
Dr. Kevin A. Strauss on team studying disease burden of Crigler-Najjar syndrome
Posted on September 12, 2019
Dr. Kevin A. Strauss, Medical Director at the Clinic for Special Children, was part of a team of researchers examining the disease burden of Crigler-Najjar syndrome. The study was reported […]
2019 Clinic for Special Children 5k to feature Whoopie Pie Medals
Posted on August 19, 2019
(Strasburg, PA August 2019) The Clinic for Special Children, a non-profit medical home for children and adults with rare genetic diseases, is hosting its 2nd annual 5k race on Saturday […]